This post is geared towards families that have been just diagnosed or have young children traveling the Becker/Duchenne Muscular Dystrophy road. I have compiled a listing of helpful links from Parent Project Muscular Dystrophy's web-site and other reputable web-sites that I hope will help.
This list of links is the same listing mentioned during the EarlyChildhood breakout session on Tuesday, June 28, 2016. You can find my full presentation after the conference on PPMD's web-site under conference presentations.
Helpful Links and Resources
Facilitating the Family with a Duchenne MD Diagnosis:
The Psychology of
Duchenne MD:
Physical Therapy:
Duchenne Care Guidelines:
Guidelines For Families:
Guidelines To Give to your clinicians
Emergency Care Info:
Clinical Trials info:
Genetic Testing help:
Education Help:
Disability Benefits Information Links:
